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Products and Publications
Recent Publications
Federal Funding and Support Opportunities for Respite, click here
National Respite Guidelines, 2011, click here
Participant-Directed Respite Guidebook, 2011, click here
2011 Compendium of State Respite Coalition Fact Sheets, click here
You can order ARCH products online at the ARCH Store or by mail (see below). Most fact sheets and smaller guidebooks can be printed from your browser free of charge. Scroll down for current products. You can also download a catalogue of ARCH Products and Publications.
Ordering by mail:
All other orders must be prepaid by check or purchase order. A shipping and handling fee of $6.00 applies to all orders totaling $15 or more within the U.S. Larger orders may incur added shipping charges. (Send e-mail for foreign postage charges). Shipping charges are noted on some of the items below. If you request ten or more free items, please include $2.00 shipping and handling. NC residents, add 7% sales tax.
Send orders to
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at:
ARCH National Respite Network
800 Eastowne Drive, Suite 105, Chapel Hill, NC 27514
Faxed orders (with P.O. number): (919) 490-4905
E-mail (with P.O. number) to
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Phone: 1-919-490-5577
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New Publications
New! Free download
Federal Funding and Support Opportunities for Respite: Building Blocks for Lifespan Respite Systems, 2012
Authors: Susan Dougherty and Jill Kagan
This guide details basic information about each of the federal programs that provide or could potentially provide respite funding or support. It is meant to be used by state Lifespan Respite Care Programs and their partners to help identify the funding sources that could be the building blocks for the state’s Lifespan Respite systems; could help serve the underserved; could help build respite capacity and quality and help recruit and retain respite workers; and would identify the individuals who administer these funds for future collaboration and partnerships. This guide can also be useful to community- and faith-based programs and other local public and private entities that are looking for potential sources of funding to help build new respite programs or expand or sustain current efforts to fund training opportunities for respite providers or to enhance quality in other ways. It can also be useful to family caregivers or those who assist them in helping to identify sources of funding that could be used to pay for respite. Having numerous potential funding sources for respite certainly does not suggest that funding is even close to sufficient to meet the need, but it does suggest the need to coordinate such efforts to maximize their benefits. Click here for complete report (pdf) or by section.
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New! Free Download
Participant-Directed Respite Guidebook, October 2011
Developed by the National Resource Center for Participant-Directed Services for the ARCH National Respite Network and Resource Center. Authors: Suzanne Crisp, Elizabeth Maguire, Isaac Selkow, and Erin Singer at NRCPDS.
The guidebook is offered as a resource for programs, including State Lifespan Respite Programs, that provide respite and are interested in developing and implementing participant-directed respite, especially through voucher programs. Included are: overview materials that provide content information regarding participant direction, examples from two states that currently implement participant-directed respite programs using a voucher system, important tax and financial information, and resources for additional materials. Click here to download free pdf file. |
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NEW! Free Download
National Respite Guidelines, 2011
Authors: Maggie Edgar, MSW, Senior ARCH Consultant and Monica Uhl, MA, Partnership for People with Disabilities, Virginia Commonwealth University
The guidelines provide principles addressing quality indicators for all respite models and services. They can act as a checklist for respite providers to review as they address service delivery issues. The guidelines are intended to be used by respite programs, individual providers, health care providers, human services agencies (i.e., disability, health, aging, and children), state agencies, planning groups, stakeholders, and others who are interested in advancing quality respite. State organizations can use the guidelines for planning future respite systems and to provide consultation
and technical assistance for local and regional agencies and programs. Local organizations and agencies can use the guidelines as they assess, plan, develop, and enhance or expand specific respite programs and services in their community. Some sections of the guidelines may be helpful when family caregivers recruit and hire their own respite providers. For more information on how to assess and use respite, consumers, family caregivers and care recipients may want to refer to the checklists and additional information included in the ABCs of Respite: A Consumer Guide for Family Caregivers. The guidelines are not intended to be standards or licensing requirements. As the title suggests, they are guidelines or guiding principles for respite programs to follow or consider. The current revisions to the guidelines have incorporated language and best practices to effectively include individuals with special needs across the lifespan. Click here for pdf document.
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Free Download
The ABCs of Respite: A Consumer Guide for Family Caregivers
This guide is useful for family caregivers who may be unfamiliar with respite, the types of programs available, and funding sources. It provides guidance on finding on assessing personal needs for respite; finding, hiring and training respite providers; and links to other useful resources. State Respite Coalitions, State Lifespan Respite Programs, or local agencies and programs, can use the document in training or public awareness activities by supplementing it with information about their own state resources. Click here to download this free pdf file.
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Free Download
Building a Statewide Respite Coalition: Where Do We Begin?
While respite coalitions have different forms and names, they share a common goal: to promote and improve respite and crisis care services within their state. Within every group, members provide a support system for each other and assist in making the most of opportunities and solving problems that are too big for one person or agency to manage. This guide is intended to assist those states or groups that are considering forming coalitions by providing the tools necessary to begin building a state respite coalition. Although the focus is on respite coalitions in particular, the material can be used for building any coalition. It can be used as a general reference or as a workbook for team members as they progress through the development of a coalition.The workbook was updated in 2009 to include additional references, more state examples, and the latest information on the Lifespan Respite Care Act and implications for State Respite Coalitions.Click here to download this free PDF file.
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Free Download
ARCH Respite Coalitions: A Compendium of Fact Sheets, Updated 2011
These fact sheets, new or updated in 2011, are used widely by state respite coalitions and others to educate their members and prospective members, family caregivers, funders, legislators and other policy makers about the resources they have available to provide assistance within their own states (each fact sheet has been formatted to stand alone as a separate document). Newly forming respite coalitions may also find the information helpful as they develop their own structure and activities. These documents should prove useful to State Lifespan Respite Programs, which are mandated by federal funding, to work in collaboration with a state respite coalition. Each fact sheet contains the following information on each state respite coalition: Start-Up Process and Coalition History; Structure; Staff; Funding; Membership; Meetings and Communication; Major Activities; Available Documents (Bylaws, Strategic Plans, Surveys, Brochures, etc.); and State Contact Information. Click here for a free download.
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Bringing Respite to Your Community: A Start-up Manual
This manual gives step-by-step instructions on how to begin a respite care program. The 332-page book includes chapters on needs assessment, the planning process, program models, budget, collaboration, marketing, funding, administrative policies and procedures, staffing, daily operations, and evaluation. Included are sample forms, policies, job descriptions, and other resources which can help existing programs reevaluate the design of their current services. $25.00 + $6.00 shipping. Order online.
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Respite Programs for Adults and the Aging: A Start-up Manual
This new 258-page manual, contains all of the topics addressed in the original manual (Bringing Respite to Your Community -- see above). Examples, forms, and resources relevant to services for adults were substituted for those in the original document. $25.00 + $6.00 shipping. Order online. |
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Funding for Adult Respite
The need for respite and crisis care continues to grow as older adults live longer and longer. This document provides basic information about Federal, State and other sources of funding for respite and/or crisis care programs for older adults. Potential funding for adult respite and crisis care services can be found in Federal and State statutes. Most often, Federal statutes require that funds flow through States or State designated entities. Click here to download this free PDF file.
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Public Awareness Guidebook
24-page guidebook for crisis nurseries and respite care programs on strategies for increasing public awareness of the availability of services through press releases, and media public service announcements. Sample press releases, telephone contacts, and more; $5.00. Order online. |
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Securing a Stable Funding Base
While materials abound on this subject, none so succinctly lays out the issues related to funding. Making reference to the classics in the field of funding, this guide book simplifies the subject and offers suggestions for trainings. Written by Sue McKinney-Cull, ARCH Product Development Specialist/Regional Coordinator; 55 pages; $10.00. Order online.
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Risk Management
A simple, straightforward approach to a complicated topic. Two attorneys from the American Bar Association Center on Children and the Law, Robert Horowitz and Marcia Sprague, co-authored this resource guide which includes potential resources, an annotated bibliography, numerous overheads and handouts, and suggested exercises for use in training. 59 pages; $10.00. Order online.
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Free Download
National Respite Guidelines, 1994
These National Respite Guidelines were prepared to assist service providers in developing quality services, and to help families have some means of discerning the quality of their options. The guidelines support the philosophy that all families can benefit from temporary intervals of rest and relief from caregiving responsibilities and that respite should be available to all families who need it. The guidelines are intended to reflect a family centered philosophy that recognizes and draws upon family strengths. The guidelines are not attempting to set standards or requirements, but merely to establish some guidelines to assist states and local communities in developing quality respite services that meet the diverse needs of families. Click here for pdf document
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Evaluation Guides and Survey Research
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Evaluating and Reporting Outcomes:
A Guide for Respite and Crisis Care Program Managers; Revised Edition; by Dr. Ray Kirk; revised by Casandra Firman, MS.150 pages and CD; $45 plus $6 shipping. Order online.
The guide explains what outcomes are and shows why programs need to be able to demonstrate their outcomes. It also provides instructions and examples of how to identify, evaluate and report outcomes. The instruments in the guide include published scales that can be purchased, scales that can be photocopied, and instructions for creating customized scales. In addition, the Revised Edition includes a CD-ROM disk which includes electronic versions of the new data collection instruments created for this project, as well as two Microsoft Access databases (for planned and crisis respite programs, respectively) which can be used to collect outcomes data. This guide will help local programs demonstrate and report on a variety of outcomes.
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Free Download
Evaluating Outcomes for Children and Families Receiving Crisis Nursery Services
The ARCH National Respite Network and Resource Center conducted the Crisis Nursery Program evaluation to examine relationships between crisis respite careand (1) incidents of reported child abuse and (2) days of involuntary out-of-home
placements. The evaluation also explored the differences in outcomes betweencrisis respite used as a secondary prevention service and as a tertiary preventionservice. Four crisis respite programs were studied, the programs each located in adifferent county in a western state, operate as a collaborative, and follow acommon service delivery model. The evaluation was conducted over 25 months,from June 14, 2004 to July 31, 2006. Click here for free download.
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Free Download
Planned and Crisis Respite for Families with Children: Results of a Collaborative Study
The Child Welfare League of America (CWLA), the ARCH National Respite Network and Resource Center (ARCH), and Casey Family Programs (CFP) National Center for Resource Family Support collaborated to lay the groundwork for the development of best practice standards for planned and crisis respire services. This report describes the survey’s findings; documents approaches to funding, administering, and delivering planned and crisis respite services to families, as described in the case studies; and makes preliminary recommendations on expanding and enhancing these services to support families and caregivers nationwide. Click here to download this free PDF file. |
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Free Download
Study of Four Lifespan Respite Programs
In 2004, ARCH endeavored to secure the most current information about the existing State Lifespan Respite Programs by conducting state surveys and follow-up interviews. While only four states had implemented State Lifespan Programs (OR, NE, WI, OK) by that time, several salient findings emerged from early lessons learned. These four programs became best practices upon which the current national Lifespan Respite Care Program was crafted. Click here for free download. |
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Videos and Posters
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Respite: A World of Relief Video
Family love and care is essential for human survival. Even the strongest love can be stretched to the breaking point when a family must provide for year-round, 24-hour care for a loved one. Through interviews with family members and program staff, this video offers the viewer an intimate look at the needs of families for support services, particularly respite care. The 15-minute video is intended to draw attention to, and educate the public and policy makers about, the needs of families for support services, and to promote the concept and benefits of respite care for families and for the community at large. VHS or DVD, $25 plus $6 shipping. Click here for sample, 1-minute clip.
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Asking for Help is a Sign of Strength Poster
Small Poster, 8½" by 11", glossy paper: "Asking
for Help is a Sign of Strength Order online.
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| Bibliography |
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Free Download
Respite: An Annotated Bibliography, 2002
This document annotates articles that focus primarily on respite research and outcomes and contains brief summaries of 38 articles written between 1979 and 2000 and published in professional, peer-reviewed journals. The summaries presented include a complete citation, a brief overview of the article, and quotations that capture some highlights of the text. Click here for a free pdf document.
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Toolkit: Lifepan Respite "101"
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Free Downloads
Updated! AoA Lifespan Respite Fact Sheet, click here. The US Administration on Aging updated this fact sheet in 2011 to provide background on the implemented Lifespan Respite Program and to provide AoA’s vision for the program.
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Updated 2011
Comparative Table of State Lifespan Respite Programs, click here.
The Lifespan Respite Care Act was modeled on state Lifespan Respite programs in OK. WI, NE and OR that were already up and running. Each program focuses on a coordinated method for respite service delivery and funding, yet each program has unique characteristics. This comparative table provides an easy look at the differences and similarities between these model state programs and allows other states to choose which characteristics they might want to incorporate into their own state Lifespan Respite Program
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Updated 2011
Application as a Collaborative Tool, click here. For States to receive a federal grant to implement a Lifespan Respite Program, they must compete for funds by completing an application to be submitted to the US Administration on Aging (see AoA Program Announcement). The Lifespan Respite law requires very specific information be included in the application. Compiling this information for the application will require research, documentation, and planning, which presents opportunities for state respite coalition, Aging and Disability Resource Center, and state agency collaboration early in the implementation process. This fact sheet provides details on what is required by law for the application as well as suggestions for how each partner could be most helpful with any or all of the application requirements. |
Updated 2012
Building Blocks for Respite: Federal Funding Opportunities, click here.
This issue brief summarizes federal funding information from previous ARCH products including Funding for Adult Respite, and updates it to provide brief descriptions of federal funding resources available, or potentially available, to states to support respite services for all ages and disabilities. This information is useful to state agencies and state respite coalitions trying to identify potential partners/respite resources at the state level, as well as important information for respite providers and others seeking funding for their own programs or for the family caregivers they serve. The list is not all-inclusive.
Updated 2011
Model State Lifespan Respite Programs, click here. This fact sheet provides a summary of the original ARCH study, Statewide Lifespan Respite Programs: A Study of Four State Programs with updated information on the current status of and contact information for the original four Lifespan Respite states.
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Lifespan Respite: Who, What, When, Where and How?
PPT Slide Presentation
These PPT slides provide answers to the questions: what is respite, why is it important, how big is the problem of respite access, what is Lifespan Respite and why do we need it? Most importantly, the presentation lays out who needs to be involved, the state requirements for preparing for and implementing a state Lifespan Respite Program in collaboration with all the neccessary stakeholders and partners, and where to find examples of innovation and best practices. Feel free to download these slides and adapt them for your own use -- with ARCH acknowledgment, of course!
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Updated!
Lifespan Respite Care Program 2009 and 2010 State Grantees Project Objectives and Planned Activities, click here for 2009 Grantees; click here for 2010 Grantees. These tables summarize the project objectives and planned activities of each of the 2009 and 2010 Lifespan Respite Grantees and partners adapted from the GAO Report on Lifespan Respite 2010. The table also includes descriptions of the role of the State Respite Coalition and the role of the Aging and Disability Resource Center (ADRC) in the implementation of each state grant.
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| National Respite Coalition Policy Documents |
Free Downloads
Benefits and Cost Savings Due to Respite Fact Sheet Click here
National Respite Coalition Policy Statements, Testimony, Funding Requests, Click here (right-hand menu)
Congressional and Organizational Letters of Support for Lifespan Respite Care Program, Click here
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Lifespan Respite Legislative History
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Free Downloads
Public Law PL109-442, Lifespan Respite Act of 2006, click here
Section-by-Section Summary of the Act, click here
Congressional Record of House and Senate Floor Statements on Passage of Lifespan Respite Care Act (December 2006), click here. This document provides the actual transcribed Congressional Floor Statements of key Senators and House Members as they debated final passage of the Lifespan Respite Care Act in 2006. These floor statements, which carry the weight of law, provide critical information on Congressional intent for how the federal government, as well as states, are expected to implement Lifespan Respite programs.
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House Energy and Commerce Committee Report on Lifespan Respite Care Act (September 2006), click here. The House Committee report is the only Congressional Report in the legislative history of the Lifespan Respite Care Act. It carries the force of law and elaborates on Congressional intent, especially related to who is to be served by state lifespan respite programs and how the program is to be administered at the state and federal levels.
Statements of Reps. Ferguson and Langevin in support of an amendment to the Labor/HHS/Education appropriations bill fund Lifespan Respite at $10 million in FY 08 (CR, page H8010, July 17, 2007). Click here
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Deadline for
Call for Papers for
8th International Respite Conference
is February 28, 2012
Get your proposal in today and come to Toronto in October 2012
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Federal Funding Guide Now Available
Click here |
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| National Respite Guidellines, 2011. Free pdf Download. |
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ARCH and the Family Caregiver Alliance are collaborating to
provide Caregiver and Lifespan Respite T/TA.
Click here for more information.
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| Evaluating Outcomes for Children and Families Receiving Crisis Nursery Services. Free PDF download. |
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