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National Respite Guidelines (Page 3)

III. Care Providers

Note: The information presented in this section and the sections that follow is pertinent for providers working within a formal respite program which is administered by an agency. Some of the information included may also be appropriate for providers who provide respite services as independent contractors or as part of a generic community service (i.e. parks and recreation program), or who provide respite more informally (i.e. volunteer program, parent co-op). In situations where cash assistance is provided for family members to locate, train, and hire their own provider, then the family may want to directly address some of the guidelines in this section.

3.1      Recruitment campaigns for providers should be carefully planned to encourage potential providers to respond to the need for respite.

3.1.1 Families should be encouraged to identify providers whenever appropriate.
3.1.2 Efforts should be made to recruit providers from ethnic and cultural groups similar to the families being served.
3.1.3 Efforts should be made to recruit providers representing both male and female role models for children.
3.1.4 Efforts should be made to recruit providers who live in areas easily accessible to families.
3.2       Because providers are the key to successful programs, it is important to thoroughly assess their qualifications and character.
3.2.1 Providers should be of good moral character and have no record of committing crimes against children.
3.2.2 Providers should be knowledgeable about child development and developmentally appropriate activities.
3.2.3 Providers should have experience working with the population of families and children they are serving (i.e., families of children with disabilities, chronic or terminal illnesses; families in crisis) and demonstrate compassion and understanding.
3.3       Paid staff should be paid a worthy wage for their work.
3.3.1 Respite programs should make every effort to pay providers wages appropriate to their level of experience and the type of care they give.
3.3.2 Whenever appropriate and possible, providers should receive benefits such as health insurance, paid sick and vacation days, and a retirement package.
3.4       Whether performing their work in the company of co-workers or in the isolation of their home or the family's home, providers should have access to peer support for the difficult and challenging work they do.
3.4.1 Regular staff meetings and inservice training should be available to all providers.
3.4.2 An administrative staff person should be assigned the duty of maintaining consistent and ongoing contact with providers to answer questions, listen to their grievances, and share in the joys of providing respite services.
3.4.3 In case of emergencies while a child is in care, providers should have access to an administrative staff person at all times.
3.5       Providers and volunteers should receive preservice training, as well as regular inservice training on topics relevant to their work.
3.5.1 Family members should be involved in determining training content and in assisting in the training of providers. Training could involve formal group presentations, as well as direct training of providers by family members in the home.
3.5.2 Providers should receive training which not only enhances their skills, but it lets them know they are a valued member of a team, worthy of receiving information to improve the quality of their work. Whenever possible, providers should be involved in determining the training and in assisting in the presentation of training.
3.5.3 Providers should receive training prior to giving care to children. Training should be individualized to meet the needs of providers. In some situations, providers may already possess the requisite skills and background. In general, the following topics should be included in training for providers caring for children. Additional topics may need to be added in specific circumstances.
  • Overview of respite services
  • Confidentiality
  • Policies and procedures for the respite program
  • Child development
  • Conditions of children which providers are likely to encounter, such as disabilities, chronic or terminal illnesses, and children at risk for abuse and neglect
  • Emergency procedures (First Aid, CPR, program emergency protocols)
  • General information about the spread of infectious disease, and universal precautions to be used in the care of children to avoid the spread of disease
  • Behavior management; what behaviors to expect from children with disabilities and chronic or terminal illness and/or children whose family is experiencing crisis; managing children with difficult behaviors
  • Effective ways to work with families of children with disabilities and chronic or terminal illnesses and/or families in crisis
  • Program procedures for the administration of medication and other health related tasks; special hair and skin care
  • Cultural diversity and sensitivity
  • Child abuse and neglect detection and reporting protocol
  • Crisis intervention; issues in domestic violence and substance abuse
  • Planning and preparing developmentally appropriate activities; maintaining appropriate routines and schedules for children
3.5.4 Providers and programs should exceed state licensing requirements, as needed, in determining the ratio of children to providers to meet the special needs of particular children.

Children in respite care frequently have additional needs for assistance and supervision. Providers can more readily respond to those needs if they have only a few children in their care. It is recommended that the adult/child care ratio be determined by the individualized needs of each child. In practice this will mean that some care will be appropriately provided in small groups, and, in some instances, care will be provided on an individual basis.
Next Section, Community Involvement

 

ARCH
"Access to Respite Care and Help"

ARCH is a National Network and Resource Center designed to create a nationwide system of respite options that provide temporary relief and support to families and caregivers. In order to meet the needs of this nationwide system, ARCH provides information, training, technical assistance, evaluation, and research activities to service providers, families, and states in developing and maintaining respite services. This work affords ARCH an opportunity to view a range of respite models and programs which subsequently brings knowledge of quality of respite services. With the large numbers of new programs springing up across the nation, ARCH believes it is important to establish some guiding principles for respite programs to follow.

 

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