Legislative
Action Center:
Reauthorization of the Lifespan Respite Act
The Policy Division of the
ARCH National Respite Network
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| Show Congress Your Support for HR 3266
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Just fill out the form below to show Congress your support for Lifespan Respite (HR 3266) and submit!
You will receive an email to verify that you would like your letter sent. Make sure you check your email!
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To Endorse the
Lifespan Respite Reauthorization Act of 2011, please click here.
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Video Statements of House Champions presented at the 2011 National Lifespan Respite Conference in Arizona on November 2, 2011 in support of introduction of HR 3266.
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To see how others across the country feel about Lifespan Respite, visit Popvox Lifespan Respite Page
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To see the latest status of HR 3266, Lifespan Reauthorization Act, click here
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FACTS and Talking Points for Respite
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- NEW! When it comes to their own situation, family caregivers are most concerned about taking care of their own personal health (84%), not having enough respite care (83%), and meeting monthly financial needs (77%). To see more survey results, see the NFCA/Allsup Family Caregiver Survey, 2011.
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- NEW! From 2011 AARP Update, State-by-State Table on the Number of Caregivers and the Economic Value of Caregiving, 2009, click here.
Source: Lynn Feinberg, Susan C. Reinhard, Ari Houser, and Rita Choula, Valuing the Invaluable: 2011 Update The Growing Contributions and Costs of Family Caregiving, AARP Public Policy Institute, 2011. To see full AARP Brief, click here.
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- NEW! Respite and Caregiving Fact Sheet, 2011, Click here.
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- Updated 2012 Cost-Savings and Benefits Due to Respite Fact Sheet 2012, Click here.
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- Making the Case: Saving Your State’s Caregiver Support Programs --Talking Points for Advocates, Administrators, Providers and Caregivers, Family Caregiver Alliance, December 2009, click here.
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2011 Caregiving Fact of the Year
In 2009, about 42.1 million family caregivers in the United States provided care to an adult with limitations in daily activities at any given point in time, and about 61.6 million provided care at some time during the year. The estimated economic value of their unpaid contributions was approximately $450 billion in 2009, up from an estimated $375 billion in 2007. This amount ($450 billion) is more than total Medicaid spending in 2009, including both federal and state contributions for both health care and LTSS ($361 billion), and as much as the total sales of the world’s largest companies, including Wal-Mart ($408 billion in 2009, the most of any company) and the three largest publicly held auto companies combined (Toyota, Ford, Daimler: total $439 billion). Including caregiving for children with special needs in the total would add 4 to 8 million additional caregivers and another $50 to $100 billion to the economic value of family caregiving (Lynn Feinberg, Susan C. Reinhard, Ari Houser, and Rita Choula, Valuing the Invaluable: 2011 Update The Growing Contributions and Costs of Family Caregiving, AARP Public Policy Institute, 2011). To see full AARP Brief, click here.
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Summary of the Lifespan Respite Reauthorization Act (HR 3266):
Use of Funds:
The Act authorizes competitive grants to Aging and Disability Resource Centers in collaboration with a public or private non-profit state respite coalition or organization to make quality respite available and accessible to family caregivers regardless of age or disability. The law allows grantees to identify, coordinate and build on federal, state and local respite resources and funding streams, and would help support, expand and streamline planned and emergency respite, provider recruitment and training, and caregiver training. Grantees will have the option of using funds for training programs for family caregivers in making informed decisions about respite services; for other services essential to the provision of respite; and for training and education for new caregivers.
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What is a Lifespan Respite Program?
A lifespan respite program provides a coordinated system of accessible, community-based respite care services for family caregivers of children and adults with special needs.
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Lead Agency Eligibility
Funds would be provided on a competitive grant basis to designated state agencies appointed by the Governor. The state lead entity must involve an Aging and Disability Resource Center and work in collaboration with a public or private nonprofit statewide respite coalition or organization (memorandum of agreement required in application). Priority would be given to applicants who show the greatest likelihood of implementing or enhancing lifespan respite care statewide.
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Who Can Access Lifespan Respite Programs?
Caregivers who are family members, foster parents, or other adults providing unpaid
(clarified in report language) care for an adult or child with a special need may access these programs. Adult with special need is defined broadly as a person 18 years of age or older who requires care or supervision to meet the person's basic needs, to prevent physical self-injury or injury to others, or to avoid placement in an institutional facility. A child with a special need is a person less than 18 years of age who requires care or supervision beyond that required of children generally to meet the child's basic needs or prevent physical self-injury or injury to others.
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Application Submission
The Governor submits application on behalf of the State Agency that administers the Older American's Act, the State's Medicaid program, or another agency designated by the Governor.
Federal Administration
Secretary of Health and Human Services is required to work in cooperation with the National Family Caregiver Support Program Officer of the Administration on Aging and other respite care programs within the Department to ensure coordination of respite for family caregivers
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Funding Authorization:
$2.5 m in FY 2012; $5 m in FY 13; $10 m in FY 14; $15 m in FY; $17.5 in FY 16
National Resource Center:
Establishes National Resource Center on Lifespan Respite Care
Click here for a copy of the Legislation
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Contact
Jill Kagan, MPH
Chair, National Respite Coalition
Policy Division of the ARCH National Respite Network
4016 Oxford St.
Annandale, VA 22003
703-256-2084
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
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